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Oct 11, 2023Liked by Informed Choice Washington

Seems like things are movin and a shaking.

Great work and God bless you

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Oct 11, 2023·edited Oct 11, 2023Author

Thank you so much, Gerald, for another wonderful article!

Regarding newborn screening, this may be an eye-opener many readers like it was for us: Washington requires the screening unless the parent asserts a religious exemption. WA retains the sample until the child is 21, but a parent can ask that it be destroyed before that. The state may use the samples in criminal investigations, and, if the sample is “de-identified,” it can be used for research! https://doh.wa.gov/you-and-your-family/infants-and-children/newborn-screening

Valerie Noble, President/Cofounder of California Health Coalition Advocacy recently gave a presentation on National Newborn Screening Laws and Policies: https://rumble.com/v3ay4k8-national-newborn-screening-laws-and-policies.html

Almost all states require newborns to have a blood sample taken by heel prick for genetic disease screening, but many parents are not informed about the ability to opt out of the testing or what happens to the residual blood samples once the testing is complete. The presentation includes an overview of opt-out, residual sample retention, and research policies of states.

Here is a link to a spreadsheet with the information Valerie collected during her research, including links to each state's laws and policies: https://docs.google.com/spreadsheets/d/1eUqhAXnpL3zIXNSazCTBh8tqi30ilV5PMjPM9wdmrh8/edit?usp=sharing

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